Responsible Conduct of Research

Adapting Western Research Methods to Indigenous Ways of Knowing - Simonds, V.W., & Christopher, S. American Journal of Public Health, 103(12), 2185-2192. (2013)

Building Research Capacity with Members of Underserved American Indian/Alaskan Native Communities: Training in Research Ethics and the Protection of Human Subjects - Jetter, K., Yarborough, M., Cassady, D., Styne, D. Health Promotion and Practice, 16 (3), 419-425. (2015). 

CBR Tips: Compensating Peer ResearchersPacific Aids Network. (2014)

This document was developed in consultation with PRAs, research coordinators, administrative staff/financial managers at community-based organizations, and academics within British Columbia. It outlines some important considerations to take into account when developing compensation plans and policies for community-based research.

CIHR guidelines for Health Research Involving Aboriginal People: Executive Summary - Canadian Institutes of Health Research. (2007)

CITI Program: Collaborative Institutional Training Initiative at the University of Miami 

The Collaborative Institutional Training Initiative (CITI Program) at the University of Miami is a leading provider of research education content. Their web-based training materials serve millions of learners at academic institutions, government agencies, and commercial organizations in the U.S. and around the world. The CITI Program makes available many courses related to responsible conduct of research including topics such as: “Conflicts of Interest”, “Good Clinical Practice”, and “Information Privacy and Security”

Community-Based Research Ethics Review: Reflections on Experience and Recommendations for Action - Downie, J. & Cottrell, B., Health Law Review, 10(1), 8+ (2001)

Community-Based Review of Research across Diverse Community Contexts: Key Characteristics, Critical Issues, and Future Directions - Shore, N., Ford, A., Wat, E., Brayboy, M., Isaacs, M., Park, A., … Seifer, S. American Journal of Public Health, 105( 70, 1294-1301. (2015)

The Community-First Land-Centred Theoretical Framework: Bringing a “Good Mind” to Indigenous Education Research?Styres, S., Zinga, D. Canadian Journal of Education, 36(2), 284-313. (2013).

Creating Research Capacity through a Tribally Based Institutional Review Board - Morton, D.J., Proudfit, J., Calac, D., Portillo, M., Lofton-Fitzsimmons, G., Molina, T... Majel-McCauley, R. American Journal of Public Health. 103(12):2160-2164. (2013)

Ethical Challenges for the ‘Outside’ Researcher in Community-Based Participatory Research - Minkler, M. Health Education & Behavior. 31(6), 684-697. (2004)

Ethical Issues in Community-Based Participatory Research: Balancing Rigorous Research with Community Participation in Community Intervention Studies - Buchanan, D., Miller, F., Wallerstein, N. Progress in Community Health Partnerships: Research, Education, and Action, 1(2), 153-160. (2007)

Genetic Research in Native Communities - Santos, L. Progress in Community Health Partnerships. 2(4): 321-327. (2008)

Institutional Review Board Challenges Related to Community-Based Participatory Research on Human Exposure to Environmental Toxins: A Case Study - Brown, P., Morello-Frosch, R., Brody, J., Altman, R.G., Rudel, R.A., Senier, L., & Simpson, R. Environmental Health, 9(39):1-12. (2010)

Kahnawake Schools Diabetes Prevention Project: Code of Research Ethics - Kahnawake Schools Diabetes Prevention Project. (2007).

OCAP (Ownership, Control, Access and Possession) Principles - National Aboriginal Health Organization. (2006)

Participatory Action Research: Considerations for Ethical Review - Khanlou, N., Peter, E. Social Science & Medicine, 60(10), 2333-2340. (2005) 

Piloting a Nationally Disseminated, Interactive Human Subjects Protection Program for Community Partners: Design, Content, and Evaluation - Solomon, S., Eakin, B., Kirk, R., Piechowski, P., & Thomas, B. Clinical and Translational Science, 7(2), 177-183. (2014)

Piloting a Nationally Disseminated, Interactive Human Subjects Protection Program for Community Partners: Unexpected Lessons Learned from the Field - Solomon, S., Bullock, S., Calhoun, K., Crosby, L., Eakin, B., Franco, Z., ... Spellecy, R. Clinical and Translational Science. (2014)

Transferring Knowledge about Human Subjects Protections and the Role of Institutional Review Boards in a Community-Based Participatory Research Project - Hyatt, R., Gute, D., Pirie, A., Page, P., Vasquez, I. & Dalember, F. American Journal of Public Health. 99(3), S526-S531. (2009)